Fibromyalgia and Low Dose Naltrexone (LDN) 2/12/11

Yep…I’ve been slacking again.  Not really…just have a lot going on.  Mostly my son, T-Jay, who is still in pain 24 HOURS A DAY.

I have been researching Fibromyalgia for a long time.  Always looking for news or something new that’s working for someone.  Also side effects of the latest drugs that are being prescribed.  I must belong to every forum and Yahoo Group that’s out there by now.  About six weeks ago I came across LDN (Low Dose Naltrexone) which seems to be helping thousands of people, but is rarely prescribed.

In case anyone is interested here is one of many links What is Low Dose Naltrexone?

I talked about T-Jay’s first doctor’s appointment here.  We went to his second appointment armed with paperwork on LDN and we talked to Rachel about the good that it seems to have done for people that have Fibro.  She had never heard of it, but was open to reading the papers and I promised to email her any studies that had been done on this.  T-Jay then left with a prescription for Elavil, which was one of the first meds prescribed for Fibromyalgia and is also an antidepressant.  Rachel didn’t want to prescribe anything that might add to his hopefully temporary liver issues and thought that this might work for him.  Well, it did not.  After the first day on Elavil, he seemed like a different person.  He slept many, many hours, but woke up in pain.  The pain never did go away, but T-Jay was like a zombie on this crap and was unable to function.  He did give it a chance, a two-week chance to work, but finally stopped taking it a few days ago.  The pain is still there, but T-Jay’s personality is back to normal.

Today he had another appointment and he let her know that the Elavil was not working at all except to make him either sleep or walk around in a drug induced daze still in pain.  She had his liver function tested again to see if it has improved any so that she might be able to prescribe an opiate like Vicodin for his pain.  The results should be in by the end of the week.  She also had him make an appointment with a neurologist to see if anything else might be going on, but that won’t be until March 2nd.  

We also talked about LDN.  She mentioned that she had talked to the other doctors at the clinic about it and that they all seemed to be pretty excited about it, but since the FDA only approved Naltrexone for drug addiction, the clinic would not let her prescribe it in the reduced dose for Fibromyalgia.  I had told her at the last visit that I could get the LDN without a prescription from India if I wanted to and today she kind of hinted around to try it, that it couldn’t hurt….without really saying that….if you know what I mean.  I then told her that I already have it and that I have been taking it myself to see if there would be any side effects in case T-Jay wants to try it.  

Tonight will be my third dose at 2 ml.  The Naltrexone comes in 50 mg tablets.  I dissolve one tablet in 50 ml of distilled water.  Then I use a baby measuring dropper to measure 2 ml.  This will be my dose for another night, then I’ll up it to 4.5 ml which will be the desired dose.  Since I’m taking it myself, who knows, maybe it will take care of my elbow issues that I have been having for the last couple of months.  Maybe it will keep at bay the pre-cancerous cell issue I have had in the past.  Having a boosted immune system can’t hurt. 🙂

So far no side effects.

I’ll leave it up to my son to decide on what he wants to do.


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